Posts Tagged ‘tattoos’

On Tuesday, I headed over by the casino to meet one of the organizers of the casino sound & light festival to discuss improving wheelchair accessibility.

The ride there was interesting.

The para transpo driver had no idea where I was going, and it had been two years since I had been there. For some odd reason, he kept asking me for directions on how to get there.
There’s a few reasons why that’s a horrible idea.

1. I don’t drive.
2. I assume most disabled People don’t go to home renovation stores often, so I had no idea where to turn off, or what streets to take. (I was going to Reno Depot, which is the french version of Home Depot.)
3. My direction skills are HORRIBLE. I’m not kidding either. I once got lost when I came out another Door of my wife’s workplace.

After about 45 minutes of trying to read french road signs, and asking 3 random car drivers on the road, we discovered that we were in the opposite end of Gatineau. I somehow still managed to make the Meeting semi on time.

Our meeting went well. I was given a very thoroughed tour of the site. As it turned out, the main reason, I had so much trouble 2 years ago is because my wife and I had general admission tickets instead of reserved seating. If you buy tickets for the reserved seating section, you can sit on a platform, which is directly in front of the fireworks.

The view there was absolutely beautiful, and it seems like it’d be incredible at night.
One of my beefs is that I’d have to pay extra for my attendant, which is extremely stupid, plus expensive. So, I will be writing a letter to the festival president to see if they’ll drop that policy.

When I was a kid, a roommate (at the hospital) went on TV to discuss how unfair it was that we had to pay for our personal care attendants if we wanted to see a movie. It turned out that our complaining made life easier for us, and other severely disabled people.

After that, it was up to the theatres on whether or not to let them in for free. Nowadays, for the past few Years, we’ve been issued an “Access 2 Entertainment” card. Whenever I go see a movie or a special event (like wrestling) at the movie theatre, I show them the card, and just pay for myself. The next step is trying to convince concert/sports venues to do the same. I’ve been discussing it with different places for many years now, and it’s a never ending battle.

Speaking of movies, on Tuesday night, I checked out The Other Guys, starring Mark Wahlberg & Will Ferrell.

For those who don’t know, Mark & Will work for the Police Force, but not as Cops.
Will’s an Accountant, and Mark was relieved of his cop job after shooting Derek Jeter.
The two of them team up to try to solve a crime in the hopes that they can earn a cop job.

This movie pokes fun of other cop movies, especially buddy cops movies.
The duo of Will Ferrell and Mark Wahlberg came off very well, and extremely funny, and it also helped that Eve Mendes was in it too. She played Will’s wife, and Mark’s absolutely stunned that she’s married to Will.

To me, Will Ferrell is a hot/cold type of actor.
On the hot side, he’s been in such great movies as, A Night At The Roxbury, Old School, Anchorman, Elf, Talladega Nights, Step Brothers, and Blades Of Glory.
On the cold side, he’s been in movies like Bewitched, Semi Pro, Stranger Than Fiction, and Land Of The Lost.

To me, The Other Guys, is one of his better movies.

As far as the rating, well, I give it a solid joysticks up. I highly recommend it, especially if you’re a Will Ferrell fan.

The rest of my week was spent trying to fix the weekend schedule for my attendants. For the longest time, I’d be without anyone for 32 hours, which is very bad considering I require 24/7 care.
Luckily, I managed to convince people to work, including a brand new attendant, and 2 that no longer work here regularly.
All that matters is that everything worked out, and I’m proud of myself.

As for my weekend plans, Saturday’s gonna be a busy day.
My sister and nephew are in town.

Saturday morning will be spent with my family visiting my Grandmother. My Grandma will be having major surgery next Wednesday, so we’re all gonna visit her at the nursing home.

After that, my sister and I will be heading to a Tattoo Shop to get tattoos. My wife’s coming too, but not getting one done. I hope to shoot some video footage of me getting my tattoo done.

After that, we’re all heading to East Side Mario’s for a family dinner. It’s very rare that we’re all able to be together, so this will be a special occasion, and I’m really looking forward to it.

As for Sunday, I’ll probably sleep and relax after a long day.

Yesterday, I met my Wife at work at Lunch time, and we headed to a Park to hear some live Jazz. I don’t remember who they were, but they were pretty good.
After that, my Wife went back to work, and I headed off in search of Espresso, and some fun in the sun.

I stopped off at Timothy’s and drank my Espresso on their Patio. It’s not a bad way to spend a Friday Afternoon.

After that, I went to a Tattoo Shop to get some ideas for my sixth Tattoo.
The ones I have now are a lightning bolt on left bicep, barbwire around left wrist, chain around right wrist, pot leaf below left knee and chinese wording which means unique, which is on my lower right leg. The Pot Leaf is designed like the Canadian Flag, and below it, it says Oh Cannabis.

Each of my Tattoos means something to me.

The lightning bolt represents my ability to quickly destroy things in my way, plus I enjoy driving my chair around fast.

The Barbwire represents the feeling of being feeling imprisoned for 19 years when I lived in the Hospital, and how I managed to jump the fence so to speak.

The Chain represents the fact that I feel chained to/by certain things in life. It also reminds me that other Disabled people are too, and to keep fighting in order to break those chains, not just for myself, but others too.

The Pot Leaf is because, well, I used to smoke Pot often. Even though I don’t really smoke anymore, I believe that it should be decriminalized or even legalized. I know a few people who smoke it for Medical reasons, and I strongly support the cause.

The Tattoo that means unique is because I think it defines my personality, my life, and even the way I look. I happen to take alot of pride in that too. I’m unique, and proud of it.

As far as my next Tattoo goes, I think I’d like to get the Wheelchair Symbol, but I’d add a Celtic twist to it or something. I’m actually Half Irish, and well, in a Wheelchair.
Pretty self explanatory I think.
I’ll probably get it on my Forearm.

As of right now, the plan is to hopefully get in done in August when my Sister’s in Town.

While on the topic of Tattoos, I was going to take my Wife to see The Girl With The Dragon Tattoo tonight, but she changed her mind.

In other news…
Apparently, this new Chair is pretty quiet, which is both good and bad.
It’s good because I can sneak up on people and scare them, and be stealthy. I love being stealthy. It’s refreshing to actually have some people NOT notice me for once.

The bad part of not sounding like a Tank is people aren’t getting out of my way as much. In my old Chair, they’d hear me coming, and the smart ones would move. I was like Moses parting the Red Sea.
The not so smart ones stare or ignore me, and if they got in my way, well, they’d become bowling pins.

And that’s just another reason why being Disabled is fun at times.

Not a whole lot happened last night. My Wife was busy cleaning her place before she goes away this weekend.

I figured today that I’d answer some questions that I get asked often or just things people wonder about me.

So here are some questions that people ask me or wonder about. (probably)

Are you actually disabled?

BS Answer: No, I’m just really freakin lazy, and I’m in it for the chicks and the SWEET parking spots.

Truth: Yes, I was born on January 4th, 1975 with a rare form of Muscular Dystrophy called Nemaline Myopathy. Muscular Dystrophy kills muscle cells. There’s various forms of NM and it affects people differently. My form affects my lungs, which renders me unable to breathe, so I use a Ventilator to breathe. I’m also unable to walk and other various things.

Is it true that you lived in a Hospital for 19 years?

BS Answer: No, I just tell that to people to see if they’re paying attention.

Truth: I lived at the Childrens Hospital Of Eastern Ontario from 1975-1994, which is infact, 19 years. When I was born, they only gave me a year to live. I lived in ICU from 1975-1981 and then got transferred to a School Aged Ward with kids who WEREN’T in Comas. I made a shitload of friends, but sadly, many of them died due to various illnesses. When the time came near that I was getting too old to be there, they asked me if I wanted to live in a Group Home or another Hospital. I chose a third option, to live on my own. On March 16th, 1994, I moved into my own Apartment with 24 hour care. At the time, I was the first person on a Ventilator to attempt it. I’m proud to say that I’m still on my own, 15 years later.

Can you speak?

BS Answer: No, I just blink & grunt when someone pisses me off.

Truth: Of course, I can speak. It can sometimes be really hard to understand me. I sound like a cross between Eric Cartman & Darth Vader. I can ONLY speak when it’s giving me a breath and that’s why I pause when I speak. Just be patient with me and don’t worry about asking me to repeat myself. I’d prefer you hear & understand me, instead of being misunderstood.

Can you have sex?

BS Answer: No, disabled people can’t have sex, should never even think about sex, or even date. If they do date, the other person MUST be disabled.

Truth: I can have sex & I abosolutely LOVE sex. The best part is that I don’t have to stop to breathe. For the record, my Wife is able bodied.

Are you married?

BS Answer: No, I sit on a street corner begging to show my penis for $1.

Truth: Yes, technically, I’m married, but not by law. Due to the type of funding that I recieve, I’m unable to marry or live with her.

Do you have any Tattoos or Piercings?

BS Answer: No, I refuse to experess myself. Tattoos are evil and my body is a Temple.

Truth: I have 5 Tattoos. My tattoos are lightning bolt on left bicep, barbwire around left wrist, chain link around my right wrist, pot leaf below left knee shaped like the Canadian Flag, and below it, it says OH CANABIS, and chinese wording which means unique, on my lower right leg. I want to get at least one more one day.

Are you Mentally Challenged?

BS Answer: Yes, I personally think I’m the King of Siam and Birds are out to get me.

Truth: While some people would argue that I am, I’m in fact NOT Mentally Challenged.

Is it true that you did Stand-Up Comedy?

BS Answer: No, I sat outside The Salvation Army for two years yelling at people. It was GOLD, baby!

Truth: Yes, I did Stand-Up Comedy for two years at Yuk Yuk’s and other local venues from 2006-2008.

Why don’t you do it anymore?

BS Answer: Too many people started throwing shit at me and I kept forgetting to wear a Helmet for protection.

Truth: Long story short, there’s no more Wheelchair Accessible Comedy Clubs in Ottawa, including the main one I performed at. Yuk Yuk’s changed locations and it’s no longer Wheelchair Accessible.

Do you miss it?

BS Answer: No, I make others laugh. Mostly old people when I run them over.

Truth: Honestly, I miss certain aspects of it like making people laugh. However, I don’t miss the politics of it or the brown nosing involved. I do plan to return someday/ somehow, but it’ll be done on MY terms. Believe me, the curtain hasn’t closed yet.

What do you do for fun these days?

BS Answer: I sit home all day and think about myself in a different City or Country, while I hold a Gun to my head.

Truth: During the day, I usually take care of business, making phone calls, emailing people, and taking care of my life. In between that, I’m usually on Twitter or Facebook, or just surfing the web. I spend alot of time outdoors in the Summer doing various things. I also enjoy watching TV, listening to music, watching movies. The time that I have left over is usually spent with my Wife.

Aren’t you that guy I see everywhere in Ottawa, such as the Market, downtovn, Sparks Street etc etc.

BS Answer: No, that’s my Twin Brother, Juan.

Truth: Yup, if you’re from Ottawa, and you’re downtown often, you’ve probably seen me, especially in the Summer. So, if you see me around in person, don’t be shy to approach me. I like knowing that you’ve seen me or you read my blog.

Are you a happy person?

BS Answer:
No, I’m a very angry, bitter person, and I hate my life.

Truth: I’m generally a very happy, easy-going, laid back type of person. While it’s no secret that I’ve had my ups & downs in life, the same can be said about pretty much anyone reading this. I have a good life, a great Wife. I also believe that OJ used a knife. How’s that for rhyming skills?

Well, that’s it for now.
If any of you have any questions, please feel free to contact me through here, or by email, or on Facebook or Twitter.

Perhaps I’ll even do another Q & A post in the future.

Thanks for reading.