Posts Tagged ‘ignorance towards disabled’

My Wife & I checked out the Pop Life Art Exhibit at the National Gallery yesterday.
Some parts of it are pretty odd, and the Music is a little loud for an Art Exhibit, but all in all, I suggest you people check it out.

After that, we headed down to Piccolo Grande to have a Gelato.

So last night, I wanted to see MonkeyJunk, but they were just wrapping up as we got there. I only got to hear half a song, but they sounded pretty good. Hopefully, they will perform at a Wheelchair Accessible Venue in Ottawa soon.

So after that, it was time for The Canadian Comedy Show, hosted by Mark Forward. The show also featured Ryan Belleville, Debra Giovanni, and Pete Zedlacher.
The show was pretty good for the most part. The Host seemed kinda annoyed, and perhaps lost due to people leaving, and not laughing at him enough.

Sadly, after Bluesfest is over, it will be awhile before I get to see Live Comedy again. For those who aren’t aware, I’m a big fan of Stand-Up Comedy, and even perform it sometimes.

Up until about a year and a bit, I performed regularly at Yuk Yuk’s. They moved to a location that isn’t Wheelchair Accessible. Since then, there’s no longer any Wheelchair Accessible Comedy Venues in Ottawa.

Needless to say, I’ve been seeing as many Comedy shows at Bluesfest as humanly possible. I find it funny/sad that a temporary Tent can be made Wheelchair Accessible, but an actual Venue doesn’t want to bother to even try to be Wheelchair Accessible.

I’ve approached both of the main Clubs here in Ottawa, and either they don’t care & flat out refuse to even try to put a Ramp, or they shut me up when I tried talking to the Media about it.

Either way, it’s a horrible situation, mostly due to Owners not really giving a crap about Comedians or Club goers.

I’m done my little rant.
Sorry

So, after the Comedy Show, I went to see Great Big Sea, or tried to.

My Wheelchair stopped working on the way in.
My Wife spent at least ten minutes trying to fix it, and it worked for the rest of the night.

Great Big Sea was great as per usual.

I want to point something out.
While my Wife was trying to fix my Chair. Security & Volunteers kept wanting to help me get in to the show.
We both refused several times.
For some messed up reason, they refused to listen to her.
Now, noticed that I said her?

None of the “rent-a-cops” asked me directly. They chose to ask my Wife instead.
My Wife told them many times that I was the one refusing help, not her.
If I can drive, I will FREAKIN drive in there myself somehow.

Furthermore, people have to learn to talk to Disabled people. While it’s true that SOME of them can’t speak, don’t automatically assume that we can’t.
It absolutely drives me nuts & boggles my mind, especially since i was publicly interviewed three times in the past week.
Plus, I’m pretty sure it was obvious that my Wife & I were chatting as they approached us each time.

Anyways, my Chair stopped working shortly after we got home.
I’m now using my old Nintendo Controller, which is really hard to use.

So, today/tonight, the only show that I’ll be able to get to is Lewis Black.

As for tomorrow, I have a ride to & from Bluesfest.
I’m definitely going to see Ryan Shaw, & then Weezer later on that night.
As for the few hours in between, that’ll be tough since I can’t drive as much as usual.

Either way, I’m sure it’ll be interesting.

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Yesterday, I discussed the Media, and how they portrayed me.
Today, I’ll discuss how people in every day life view me.

When I was a Kid, people often felt sorry for me.
For some reason, Adults feel extra sorry for sick kids.
Funny how it seems that people seem to feel differently about sick Adults.
They just seem to care less.

For example, I’ve never seen or heard of a Make-A-Wish Foundation for Adults.
If one existed, and I was dying, I’d either ask to go to Vegas, the Playboy Mansion, or star in a Porn Movie.
Who am I kidding? I’d want to do all three things.

Anyways, back to my point.
As a 35 year old Disabled person, I still get stared at, but typically from the “outsiders”.
By outsiders, I’m referring to Non-Canadians.
Generally speaking, Canadians tend to be more understanding. It also helps that I go out pretty often, and I’m a vital part of the Community that I live in.
People see me out & about, and they catch on that I do stuff just like anyone else does.

I’m assuming that the reason that the “outsiders” stare at me is because they don’t understand. Also, chances are that they kill people like me in their Country, or at the very least, treat them like outcasts.

The World is a messed up place in some parts.

The thing that amuses me is when people on game sites or chatrooms find out that I’m Disabled. Often, their first reaction is “I’m sorry to hear that”.

Why are you sorry?
It’s certainly not your fault, and I’m certainly not bitter about my life.
To me, I think people should feel worse for people who BECOME Disabled, either due to an accident, or a sudden disease.
As for me, I was just born this way. It’s the only life I’ve ever known.

I’ve fought long and hard for even the simple things in life.
That’s ok by me.
It just makes the reward seem sweeter, and I’m truly thankful for everything I have.

Happy Labor Day Weekend!

Yesterday, (Friday) I went for a walk. I was only gone for an hour, but I managed to piss off a Blind man.

Here’s what happened:
The guy was swinging his cane wildly while he was crossing the street.
I was crossing as well, but in the opposite direction.
I veered to the very left side to avoid him, but his Cane hit my Wheel.
He then called me a fucking jerk and told me to watch where I was going.
I just laughed to myself afterwards.

He already seemed pretty pissed off though, before I came along.

I returned home shortly after and spent a few hours with my Wife.

As for (Saturday) today, my Wife and I headed to the Glebe Fine Arts Show.

Along the way, we passed by a Barber Shop.
My Wife was just talking about getting a haircut and I haven’t shaved for a few days now.
So between the two of us, we were prime targets.
One of the guys that works there came out to talk to us.

For the past few weeks, I’ve been considering growing a Beard and Moustache, like the one Mario has on America’s Got Talent I think it would make me look a little darker and edgier than I do now. I tend to have a dark/edgy personality, so it would just go well with it.

Problem is though, if I don’t shave for awhile, it starts to get itchy and I end up shaving it off. Itches sometimes really PISS me off, especially since I can’t scratch it myself.

Luckily, I have a Wife for when I get Crotch itch.
Not to say that it happens often, but it’s good to have options.

Where was I?
Oh yeah…

The other thing is that this Barber Shop charges $44 for that service. That’s pretty insane for me. I’m gonna keep scouting a few other Barber Shops in Ottawa.
Hopefully, I’ll find a good one.
Perhaps, I’ll drop by the Barber Shop that I went to when I was growing up.
I saw my old Barber just last year when I dropped in to say hi, and he remembered me. So, it’s a possibility.

With that, we took the Bus and headed to the Glebe Community Centre.
This was my first time there.
It wasn’t bad. It was hard getting into some of the booths due to the amount of people.
After that, my Wife went to Starbucks to get something to eat before the ride home.

As of right now, I have no plans for tonight.
The Jerry Lewis Telethon For Muscular Dystrophy starts tonight, I think.
Even though, I have MD, I tend to avoid the Telethon.

I don’t agree with how we’re portrayed.
I understand it’s a Telethon and pity sells, but I don’t have to be a part of it, even though I was when I was a kid.
My Disability is a part of me, but it doesn’t define me or my life.

A part of me laughs when I get the Newsletter from the Local Chapter of the MD Association.
I always think that I’ll open it up and it’ll say, Congrats! You may already have MD!

Well, I hope you people enjoy your long weekend.

Thanks for reading.

I started my Friday Morning at 9 am, which is early for me. I had an appointment at 11. When I arrived to the Clinic, i had to go to the bathroom, but someone was in there.

You know what really grinds my gears?

One of my pet peeves in life are able bodied people who use bathrooms made specifically for disabled people.

There’s a big sign on the bathroom door with the wheelchair symbol and it says Washroom below it. The one for able bodied folks is literally right beside it.

A few minutes later, the guy walks out, no apology even. Meanwhile, I’m late for my appointment just because some guy decided to take a shit in the Disabled Person’s bathroom.

While I’m on this topic.
Who came up with the design for the wheelchair symbol?
It’s messed up!

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First of all, by their logic, we’re all bald with skinny necks. Apparently our limbs are perfectly squared too.
For some reason, the chair’s back wheel isn’t even connected to anything. So basically this oddly shaped “C” is following Square Man’s ass.

Someone needs to update the symbol. I’m sure that one has scared a shitload of kids and probably even some Adults.

I can just imagine a kid saying “Mommy, what’s wrong with him?” “Well, when he was born, he had a “C” sticking out of his ass, Timmy, and that’s why he can’t walk”. We call them “Disabled” or “Physically Challenged”.

Well yeah, if I had a “C” sticking out of my ass, I’d be freakin disabled.

So after my appointment, my Wife & I headed home for Lunch. We both left at 1:30 to seperate places.

My Wife had to go for a Mammogram. She told me that I could post the following on my blog.

She said that she thinks they should give out free bras following the Mammogram. The same way that a Dentist gives you a free Toothbrush after your visit.

Please keep in mind, that between the two of us, I’m the one who performed Stand Up Comedy for two years.

Anyways, as for me, I headed out to try to get a new Health Card, but I had no luck. They wanted my Birth Certificate, which I don’t have.

I returned home shortly afterwards.
I have a friend coming over tonight.

There’s some Bagpipe thing going on this Weekend on Parliament Hill called Fortissimo. Basically it’s a Military/Musical spectacular. We’ll probably check that out at some point this weekend.

Other than that, that’s about it for now.

Thanks for reading.

So, I picked up my Wife from work yesterday and we headed downtown for a little while. It looked like it was gonna pour at any moment, so we headed home.
As luck would have it, right after we got off the Bus, the Sun started to return. At least, we didn’t get wet though.

Before my Wife came to meet me, an old Woman came up to my Attendant to talk to her. I didn’t know what she said because I was a few feet away. Apparently the Woman told her that she felt sorry for me. Once we found this out, we all started laughing as we left the Building.

The last thing anyone should do is feel sorry for me. I have a pretty good life these days. I’m married to a wonderful Woman who I love very much, possibly more than she knows. I’m generally a happy person and I have the freedom to do whatever I want. Now, if you want to give me money, that’s a different story.

Just kidding!

Speaking of which, I remember one of the times that we went to Montreal and a Woman gave me two Dollars. All I was doing was sitting outside and waiting for my Wife. Oh wait, I get it, she thought I was panhandling. I thought maybe she wanted my “services”.

My bad!

It’s gonna be a busy weekend coming up.
On Friday night, we’re going to some Dance party for the Rideau Canal Festival. My Wife & I “Adopted-A-Metre” and I’m going to name our metre, Asphaltic. I’m just that damn cool. There’s also the Busker Festival this Weekend on the Sparks Street Mall, plus there’s fireworks at the Casino.

We’re not actually going to the Casino to watch them. We did that last year and they have a HORRIBLE setup for Disabled people. I had a good time when the show was happening though.

So, it’s gonna be a busy one. Hopefully, the weather co-operates.

Thanks for reading.

I’ve been blogging for almost ten years on various websites in the cyber universe. To me, I think of it as an outlet for me to vent, plus also educate the masses about what it’s like to be disabled. At least, as far as my disability goes. By no means am I an expert about disabilities in general, but I do try to do my part to make information a little more accessible.

In my personal experience, I don’t come across a lot of disabled users online. At least not ones that admit they’re disabled. For all I know, there could be many, but either I haven’t seen them, or they hide the fact that they’re disabled.

I visit a lot of different sites, whether it’s to chat, play games, write etc. Fact is, I spend a lot of time online, especially in the Winter. Whenever possible, I tell people that I’m disabled and if they have any questions, don’t hesitate to ask. Most people infact DO ask questions and I answer as honestly as I can. I have a question for you peopleĀ  though.

Why can’t people do that in real life?

When I go out, people often stare and/or say something to themselves or if they’re with someone. I wish more people in this world has the balls to say, “Dude, what the fuck happened to you?”. Sure, that sounds rude or offensive to most, but personally, I’d laugh and gladly answer. Yes, I march to a different beat than most. Hell, I wheel to a different beat.

Kids often come up to me and ask me point blank what happened to me. The Parents usually drag them away because they think it’s rude. If I get a chance to answer the kid, I simply say that I was born this way. Sometimes the child smiles to let me know that they understand. Others just sit there looking REALLY confused and thinking that I’m a Robot. Hey, if I was a kid, I’d want a 500 pound Robot too, either that or be scared shitless.

To me, it doesn’t overly matter what they’re thinking. The point is that the message got out there and they just met their first (or one of their first) disabled person. The fact is that it will happen again sooner or later, and perhaps now or later in life, they will be less freaked out.

All of this is magnified when I go out with my Wife. The thought of a disabled person having sex is messed up enough for many people. A disabled guy with an able bodied woman is even crazier for many.

The World is made up of a hell of a lot of crazy people, but to me, it just makes life interesting and fun. There’s also a lot of people out there that hate diversity and different people and things. If it were up to them, we’d all think the same, act the same, and even look the same.

Thankfully though, I happen to be different, but also just like you.

See you next time, everyone.

Last night was pretty interesting.

We went to see Salman Rushdie talk about his views on the World and Religion.

We arrived around 7:30 and the thing started just after 8.

We had tickets for reserved seating, which was worth $75 and near the front. There was no way for me to get there due to stairs. They covered their ass by offering my Wife a chair by the stairs instead. The chair was broken, so we had to get another.

I don’t care if we won the $75 tickets. They don’t know if we paid for them or not. They could’ve at least been a little more respectful, but that’s my opinion.

Much to my surprised (not really) there was no wheelchair accessible bathroom. Not that I’m a drinker anymore, but a glass of Wine would’ve been really good. Over two hours later, I was really glad that I didn’t drink because I really had to pee.

This is just my opinion, but if the festival wants to spend all that money to import a tent from Belgium, they may wanna see if disabled people can enjoy it as much as anyone else.

I guess they don’t expect disabled people to afford $75 or want to have some fun under the big top.

We’re poor crippled folks, ya know?

It’s good to see that the “Rosa Parks — back of the bus” mentality has become “disabled person — back of the room” mentality.

I even would’ve had a hard time meeting him because the meet and greet on stage. I’m sure he would’ve came to us, but it was late anyways. Apparently, he was staring at me for awhile before he went on stage. It could’ve been interesting if we had met.

Tonight, I’m going to Rehab to play Boccia. The Regional Tournament is this Saturday from 9-4. I’m kinda nervous/anxious, but hopefully it’ll go well.