Posts Tagged ‘hospital’

Before I begin, I just wanna say that I spent a few hours last night with my Wife & I saw her this morning before she headed to the Train Station. Also, she said that I can watch America’s Got Talent that I recorded on Wednesday Night. Once I see it, I’ll post the results here and see if my votes counted. I’ll probably watch it either tonight or tomorrow.

Alright, so how many of you remember the big blackout of 2003?
I certainly do.

I’ve posted this story at least once before on here, but alot of new people are coming to this blog lately, so I’ll write about it again.

It was around 4 PM on August 2003. I decided that I was gonna do Laundry. I gathered all my stuff and headed to the Basement. I had just put my Clothes in the Washer when the room went pitch black. Luckily, I hadn’t started the Washer yet. The blackout started at 4:15 PM.

I headed into the hallway and hoped that the Elevators would work. Luckily, I managed to get back to my place. I stayed home for a few minutes, then decided to head out. I wanted to see how people were adjusting to it and what it was like around downtown Ottawa during this.

As I headed outside, I passed by my best friend. (R.I.P. Chris Puddy)
We spoke for a few minutes and I asked him if he wanted to come along, but he said no. I remember saying as I left, “I don’t know what’s gonna happen or what I’ll see, but either way, I’ll see you on the other side of this”.

With that said, I headed downtown to The Byward Market to see what was going on. By the time I got down there, most places were either closed or closing up. It was very bizarre for me driving my Wheelchair down the Street and not seeing traffic lights. I saw Cops and even normal Citizens directing traffic.

When we arrived at the Market, a Woman from CBC stopped me for an interview. She wanted to know how I was coping with the Blackout and how it affected me. At this point, it didn’t really bother me. I wish she had stuck around cause the story was about to get a whole lot more interesting.

I headed to (then called) the Chateau Laurier Hotel to use the bathroom. At this point, I was starting to worry about my Battery on my Ventilator. The Manager of the Hotel saw me and asked if I needed a ride to the Hospital.

A little while later, Para Transpo arrived and they took me to the Hospital, so I could get plugged in. I arrived and they put a face mask on me, which annoyed me.

A few hours later, my Battery died, so they gave me a bed in the ER. As time went on, I started getting tired, so I tried to sleep.

It was hard enough dozing off with all the alarms going off. Just as I closed my eyes, they decided to ship out everyone who were just there using the power.

At 3 AM, a Para Transpo van had arrived to take us to a Community Centre in Orleans. Orleans is about a 30 minute drive from the Hospital. So here I was, in a van with strangers, barreling down the highway after 3 AM.

We arrived at our destination just before 3:30 AM and we wanted to sleep. This time, they gave us Cots to sleep in. Sleeping on a Cot when you’re disabled isn’t the best idea in the World. I was extremely uncomfortable and my back was starting to hurt.

At this point, I had given up on the idea of sleep. I just wanted to go home and sleep in my own bed.

At 9 AM, I heard that power was slowly returning to people living downtown. I hopped on a Bus & returned to the comfort of my home and my bed.

Needless to say, I slept for the rest of the day.

Thanks for reading,

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Not a whole lot happened last night. My Wife was busy cleaning her place before she goes away this weekend.

I figured today that I’d answer some questions that I get asked often or just things people wonder about me.

So here are some questions that people ask me or wonder about. (probably)

Are you actually disabled?

BS Answer: No, I’m just really freakin lazy, and I’m in it for the chicks and the SWEET parking spots.

Truth: Yes, I was born on January 4th, 1975 with a rare form of Muscular Dystrophy called Nemaline Myopathy. Muscular Dystrophy kills muscle cells. There’s various forms of NM and it affects people differently. My form affects my lungs, which renders me unable to breathe, so I use a Ventilator to breathe. I’m also unable to walk and other various things.

Is it true that you lived in a Hospital for 19 years?

BS Answer: No, I just tell that to people to see if they’re paying attention.

Truth: I lived at the Childrens Hospital Of Eastern Ontario from 1975-1994, which is infact, 19 years. When I was born, they only gave me a year to live. I lived in ICU from 1975-1981 and then got transferred to a School Aged Ward with kids who WEREN’T in Comas. I made a shitload of friends, but sadly, many of them died due to various illnesses. When the time came near that I was getting too old to be there, they asked me if I wanted to live in a Group Home or another Hospital. I chose a third option, to live on my own. On March 16th, 1994, I moved into my own Apartment with 24 hour care. At the time, I was the first person on a Ventilator to attempt it. I’m proud to say that I’m still on my own, 15 years later.

Can you speak?

BS Answer: No, I just blink & grunt when someone pisses me off.

Truth: Of course, I can speak. It can sometimes be really hard to understand me. I sound like a cross between Eric Cartman & Darth Vader. I can ONLY speak when it’s giving me a breath and that’s why I pause when I speak. Just be patient with me and don’t worry about asking me to repeat myself. I’d prefer you hear & understand me, instead of being misunderstood.

Can you have sex?

BS Answer: No, disabled people can’t have sex, should never even think about sex, or even date. If they do date, the other person MUST be disabled.

Truth: I can have sex & I abosolutely LOVE sex. The best part is that I don’t have to stop to breathe. For the record, my Wife is able bodied.

Are you married?

BS Answer: No, I sit on a street corner begging to show my penis for $1.

Truth: Yes, technically, I’m married, but not by law. Due to the type of funding that I recieve, I’m unable to marry or live with her.

Do you have any Tattoos or Piercings?

BS Answer: No, I refuse to experess myself. Tattoos are evil and my body is a Temple.

Truth: I have 5 Tattoos. My tattoos are lightning bolt on left bicep, barbwire around left wrist, chain link around my right wrist, pot leaf below left knee shaped like the Canadian Flag, and below it, it says OH CANABIS, and chinese wording which means unique, on my lower right leg. I want to get at least one more one day.

Are you Mentally Challenged?

BS Answer: Yes, I personally think I’m the King of Siam and Birds are out to get me.

Truth: While some people would argue that I am, I’m in fact NOT Mentally Challenged.

Is it true that you did Stand-Up Comedy?

BS Answer: No, I sat outside The Salvation Army for two years yelling at people. It was GOLD, baby!

Truth: Yes, I did Stand-Up Comedy for two years at Yuk Yuk’s and other local venues from 2006-2008.

Why don’t you do it anymore?

BS Answer: Too many people started throwing shit at me and I kept forgetting to wear a Helmet for protection.

Truth: Long story short, there’s no more Wheelchair Accessible Comedy Clubs in Ottawa, including the main one I performed at. Yuk Yuk’s changed locations and it’s no longer Wheelchair Accessible.

Do you miss it?

BS Answer: No, I make others laugh. Mostly old people when I run them over.

Truth: Honestly, I miss certain aspects of it like making people laugh. However, I don’t miss the politics of it or the brown nosing involved. I do plan to return someday/ somehow, but it’ll be done on MY terms. Believe me, the curtain hasn’t closed yet.

What do you do for fun these days?

BS Answer: I sit home all day and think about myself in a different City or Country, while I hold a Gun to my head.

Truth: During the day, I usually take care of business, making phone calls, emailing people, and taking care of my life. In between that, I’m usually on Twitter or Facebook, or just surfing the web. I spend alot of time outdoors in the Summer doing various things. I also enjoy watching TV, listening to music, watching movies. The time that I have left over is usually spent with my Wife.

Aren’t you that guy I see everywhere in Ottawa, such as the Market, downtovn, Sparks Street etc etc.

BS Answer: No, that’s my Twin Brother, Juan.

Truth: Yup, if you’re from Ottawa, and you’re downtown often, you’ve probably seen me, especially in the Summer. So, if you see me around in person, don’t be shy to approach me. I like knowing that you’ve seen me or you read my blog.

Are you a happy person?

BS Answer:
No, I’m a very angry, bitter person, and I hate my life.

Truth: I’m generally a very happy, easy-going, laid back type of person. While it’s no secret that I’ve had my ups & downs in life, the same can be said about pretty much anyone reading this. I have a good life, a great Wife. I also believe that OJ used a knife. How’s that for rhyming skills?

Well, that’s it for now.
If any of you have any questions, please feel free to contact me through here, or by email, or on Facebook or Twitter.

Perhaps I’ll even do another Q & A post in the future.

Thanks for reading.

It’s been a few months since my last post on here.

Last time I was here, I was dealing with tough health issues and even ended up staying in the Hospital for a week. It was really tough being there, mostly because I wasn’t used to it. The last time that I was a Patient was in 1995 and that was for 3 days. Needless to say, my week stay was hard on me and of course for my Wife as well.

I’m happy to report that I’m pretty much 100% again and I’m done taking Rat Poison Pills for the Blood Clot that I had. That also means no more weekly blood tests.

Speaking of health issues…

During the whole ordeal, I did two swallow tests and they determined that I aspirate ONLY when I eat or drink or in my wheelchair, but NOT when I eat or drink lying down. So basically, I’m the OPPOSITE of most humans. You should’ve seen the Doctors faces when they found out and even my own Doctor couldn’t explain it.

I’ve always known that I was a Medical enigma, this just cements my belief.

Nowadays, when I drink sitting up, I go very slow & take my time.

Besides all that crap, I got better just in time for Summer and I’ve been enjoying the hot, sunny weather. Right around the corner is Bluesfest which starts July 8th to the 19th. The big act that I’m looking forward to seeing at Bluesfest this year is KISS.

Among the others: Styx, LIVE, Ludacris, Busta Rhymes, Ice Cube, The Dead Weather, Ben Harper, Joe Cocker, Our Lady Peace, Stone Temple Pilots, Sam Roberts, Blue Rodeo, Yeah Yeah Yeahs, The Yardbirds, The Zombies, Neko Case, Holy Fuck, & MANY MANY more.

For more info, go to http://www.ottawabluesfest.ca/en/

This year, they’ve added free shows elsewhere.

I plan on seeing George Clinton & The P-Funk All Stars, The Proclaimers, & Arrested Development.

For more info on that, go to http://www.bluesfestbyward.com/

You may be wondering why I’m promoting it so much. Well, not only is it a great festival, but also because I helped with making it more wheelchair accessible and I’m proud to see my ideas come to life & hopefully help others like myself get to the different stages easier.

Speaking of music…

We all know by now that Michael Jackson passed away last Thursday. Part of me is still in shock, but not overly surprised. Let’s be honest, I wasn’t really expecting a happy ending to his life. Even Michael himself once told Lisa Marie Presley that he didn’t want to die the way Elvis did. Sadly, he did and now he’ll probably be remembered in the same way, even YEARS from now.

I still remember dressing up as Michael for Halloween when I was a kid, complete with one white glove. I had a Poster of him and the Thriller casette. I think I actually still have the tape somewhere.

Regardless of what you thought of him, you can’t deny his success and when Thriller came out, it was groundbreaking, not only for music videos, but for music in general. He was truly THE MAN when it came to music and I’ll always remember him for that.

In other news…

I discovered Twitter about a week ago. At first, I wasn’t really sure what to make of it, but it’s growing on me, much like a fungus. If any of you use Twitter, you can find me at ryanlythall.

Original name eh…

That’s it for now, but I’ll be back soon.

Thanks for reading everybody & please let me know that you read it.

I haven’t felt like posting for the past few days because I’m tired of talking about my health issues. I’m happy to report though that I’m off the needle though and today was my last day for my Antibiotics. So, that means that as of now, I have only one drug to deal with. It happens to be the Rat Poison Pills, which taste really really bad.

Last night, my Wife & I were finally gonna have a night out and go see The Wrestler.Just before we left, I started having Stomach issues. Once they subsided, we rented WALL-E, which I recommend you check out if you haven’t already.

By now, you’re probably wondering why is this a historic day for me.

On March 16th, 1994, I left the Childrens Hospital Of Eastern Ontario after living there for 19 years. The main reason that I stayed there for so long is because there wasn’t anywhere else to put me.

My years included 6 years in ICU, followed by 9 years on a ward full of school aged kids, followed by 2 years on a ward full of babies and other kids that needed long term care. From there, they sent me back with the school aged kids.

My “happiest* time was being with the school aged kids. I was able to make TONS of friends. We got to hang out, play video games, or we’d just talk and I’d try to cheer them up during their stay. Whenever there was a new kid or family, I’d usually show them around the ward and answer any questions they had. The downside was that ALOT of my friends passed away due to various diseases & illnesses.

When I was about 14, I got asked if I wanted to live in a Group Home or in a Long Term Care Hospital. My response was that I wanted to live in my own place. At the time, a person requiring 24/7 care wanting to live on their own was simply unheard of, at least here in Canada.

My Mom & I quickly started a letter writing campaign to see if it was at all possible. We hit many roadblocks as expected, but in the end, we prevailed.

On March 16th, 1994, I woke up for the last time at CHEO. The Hospital threw me a big party, the Nurses & other Staff came to say goodbye,  and the Media was out in full force. I was the first guy in Canada to attempt this.

It definitely hasn’t been easy, but it still feels amazing.

Just 4 years ago, they tried to kick me out of my home, simply because it was too expensive to keep me here. This time around, my Wife & I successfully won that arguement and I’m still here.

15 years later

My goal is to surpass 19 years and at least be able to say that I survived longer on my own than I did in the Hospital.

As the song goes, “Nothing is better than freedom”.

Thanks for reading.

So my day today was filled with two Medical appointments at two different Hospitals at opposite ends of the City.

I started at The Civic Hospital for my (almost daily) Blood test. Much to my surprise, they got it in again on the first try. So far, they’re 2 for 2, which is a damn good thing at this point in time. My next test is on Friday, and here’s hoping they go 3 for 3.

From there, I headed to The Rehabilitation Centre to see my Respirologist. We went over everything that’s happened to me in the past month. Just once, I’d love to have a Doctor look at me and say, how the fuck are you still alive? I’ve seen MANY Doctors in the past 34 years and I can assure you that many of them were thinking that.

Anyways, the Respirologist changed a setting on my Ventilator and it seems to be helping me breathe better. He also said for me to be patient and to keep doing what I’m doing.

From there, I waited an hour for my ride home. I think the waiting was the hardest part.

As for tomorrow, I plan on relaxing after making some calls.

The fun never ends.

I had a pretty rough week since my last post.

My Flu turned into Pneumonia, which is tons of fun.

On Tuesday, I checked into the ER just before 7 PM and was there until 2:30 in the Morning. They ran a few tests, took bloodwork, started an IV, and gave me a Chest X-Ray. In the end, they sent me home with Drugs & a Puffer.  I seem to be getting my energy back and having less problems breathing.

I’ve been getting sick for the last few years, right around this time of year. I thought I had managed to hide from it this year, but no, I got it and it hit me hard.

The good news is that I’m slowly getting better and I truly think the worse is over. I really hope that nothing else happens to me for awhile now. I really don’t think my patience (or lack of) could handle it.

Barack Obama visited Ottawa last Thursday. I probably would’ve headed out to see him, but I was pretty sick still. Even though, the visit only lasted a few hours, the impact is still being felt here in Ottawa. During his visit, he met with Stephen Harper, Michelle Jean, & Michael Ignatieff.

So tonight’s The Oscars. I’m not really a big fan of them, but I’m hoping that Heath Ledger and Mickey Rourke both win. I haven’t seen The Wrestler due to poor times at the theatres here. I’d kinda like to see Slumdog Millionaire too, but haven’t really had the chance to yet. As for The Dark Knight, that was a GREAT movie and I think Heath was great as the Joker.

Well that’s it for now, but I should be around more often now.

Thanks for reading, Blog fans.

I had a rough weekend.

On Sunday night, I was rushed to the Hospital because I had problems breathing and severe chest pain. I should point out that I use a Ventilator 24/7 to breathe. Needless to say, it can be pretty risky/dangerous when I have breathing problems. The Ambulance came to pick me up, along with my Wife and my Attendant. We got there about 15-20 minutes later and then we had to wait another 15-20 minutes to get into the ER.

We got in there and they quickly went to work on me. They hooked me up to wires and tubes. Eventually, they gave me a Chest X-Ray, took blood, and started an IV.

It’s always a challenge to get blood from me due to the fact that it’s hard to find a vein on me. It took at least 3 stabs by 3 different people to finally get blood from me. They finally got it on my left hand. My right arm and hand are pretty bruised up still.

A little while later, the Doctor returned to tell me that I had Pneumonia and they were going to put me on an Antibiotic.

Dud to my Disability, I have a hard time chewing. The Drug that they wanted to give me was in Pill form, so they had to change it to something for Children. I don’t have a lot of faith that it will cure me, but I’m feeling a bit better.

They discharged me soon after and I was free to go home. The problem was that I had no way home. When the Ambulance picked me up, they weren’t able to take my wheelchair because there was no room for it. Our only option was to pay $80 for a regular Ambulance to pick me up or pay $114 for a “specialized” Ambulance. We chose the less expensive option.

We waited all night in the ER to get picked up, but nobody showed. By 8 am, we were exhausted and fed up. My Wife took a Cab home to pick up my chair and returned to the Hospital with it. We managed to get a wheelchair accessible Taxi and headed home.

By the time we got home, it was Noon. We had been gone over 12 hours and with no sleep. My Wife and I spent the rest of the afternoon napping on & off and just relaxing together in bed.

It was rough on the 2 of us and we’re still feeling the effects of just being in the Hospital for 12 hours without sleep.

As of now, I plan on playing Boccia tonight. I don’t really feel like going, but I’m hoping that it will make me feel better and get my mind off things for awhile.

Thanks for reading and I’ll be back very soon.