Archive for the ‘Uncategorized’ Category

Despite the title, this isn’t a post about my sex life.

I know it’s been awhile since my last post.
I have alot to say, so let’s get to it.

So last Saturday, it was crappy outside, so I stayed home.
Later that day, I spent the Evening with my Wife.

Luckily, the next day was beautiful, so we took full advantage of it.

We started off by heading Downtown to check out a Cafe that my Wife heard about.
The place is called Xpresso, and it’s right behind the Metro Grocery Store on Rideau Street.
It’s a pretty nice place, but the pictures on their Website make it look bigger than it is.
The Bathroom is Wheelchair Accessible, they also sell my favorite Beer, and their Espresso’s pretty good.
They also have TVs everywhere.
On Thursdays, they have live Music, so I plan on checking that out at least once this Summer.
If you’re in Ottawa, I suggest you check it out.

If you go, tell them Ryan sent you. They’ll have no idea who the hell you’re talking about, but it might be funny.

So after that, we went Shopping.
Now, as most Married Men know, Shopping with your Wife or sig other is never as quick or easy as we envision.

By the time we were done, it was time for me to go home for a bit.
About thirty minutes later, we headed back out, and walked down by the River.
We just walked around, took pictures of the scenery, and then headed home.
It was nice & romantic.

Monday was my big appointment for my new Wheelchair.
This is the day that I’d get to take a loaner Chair home to try it out.
Before I did that, I got transferred from my old Chair to a bed, so they could transfer my seat to the other Chair.
From there, I got put back into the new Chair, and all set up so I could try out the new Joystick.

At first, I had a hard time driving it because it was too fast, and it kept tipping backwards. I also kept running into things.
After a few minor adjustments, I tried it again, and it went much better.

Later that day, I went to the park to try it out in a wide opened space.
Everything kept getting easier, plus I’m typically a quick learner.

Originally, I was just gonna try it until Thursday, but I was unable to get to my Appointment.
As of now, I’m not sure when I’ll be returning it.
I wish I could try it out for the whole Summer while the paperwork’s being processed, but I doubt it.

On Wednesday, I co-taught a Workshop about Stand-Up Comedy.
This was for people with various Mental Disorders, which made things interesting.

We started off with six people.

One person decided to draw instead of taking notes.
One person became agitated/uncomfortable and decided to leave.
Another person kept coming & going, but eventually stayed.
We ended up having 5 people left by the time it ended.

All in all, it was an interesting experience.
I hope to do it again eventually.

I got home around 1:35 pm.
Little did I know, my day was about to become more interesting.

At 1:41 pm, as I was heading back out to get an Espresso, an Earthquake happened, and it was big, at least for this Area.
My Wife called to see if I was ok, and luckily, everything was ok. Nothing fell or broke.
Her Office Building was being evacuated.

From there, I headed out to try to find her.
I just had this sense that she needed me, and I wanted to be there for her.
Sadly, I couldn’t find her though.
I guess I’ll never make the cover of a cheesy Romance Novel.

There were TONS of people standing around outside because every Office Building Downtown got evacuated.
After awhile, I gave up looking for her & tried to get an Espresso, but most places were closed due to the Quake.
I came across Tim Horton’s, and managed to get a Coffee.

I headed home, & my Wife called soon after that.
She bought me an Espresso, which was damn good.
So at that point, I had half a Cup of Coffee, plus an Espresso.
Since I got up at 8, I needed them both.

We were supposed to go to the Jazz Festival that night, but it rained.
Instead, we ended up having a nice quiet Evening together.

Thursday was a Holiday for French people, so I was able to spend part of the day with my Wife.
We had Espresso, and really delicious Chocolates.

As of now, no real plans this Weekend besides seeing my Mom before she leaves for a Month.

Sorry that this post was so long, but I hope you enjoyed reading it.

Advertisements

On Saturday, I spent the rest of the day watching movies.
This is what I watched:

The Bucket List
Donnie Darko
Funny People
Dumb & Dumber.

I had seen them all at least once before, but when the weather’s crappy outside, watching movies is fine.
I still haven’t seen Iron Man 2 yet, but perhaps I’ll go sometime this week or weekend.

After a lazy day on Saturday, I was hoping to get out on Sunday, and I certainly did.

My Wife & I attended Westfest, which is a Street Festival, held in Westboro, which is in the west end of Ottawa.
We’ve been going for the past few years now.

They have different businesses/stores open, plus live Entertainment.
We stopped off at an Optometrist’s office, an Ice Cream Store, Outdoors Store & a Coffee Shop.
The rest of the time was spent walking up & down the street getting free stuff.

After we were done, my Wife showed me more of Westboro.
This was actually my first time in the other part of the area.

We started off at another Outdoors Store.
For some reason, I always feel out of place in those places.
At one point, I parked my Chair right beside the Bikes.
I was thinking that someone might try to test drive me, or buy me, but no.

From there, we headed to a HUGE Grocery Store.
My Wife had to get a few things.
We ended up getting off on the wrong floor, and were in the rafters of the Grocery Store.
I kinda got to thinking of turning up my Voice Amp just to see if I could mess with people down below, but I didn’t.

Maybe next time.
You never know where or when I’ll show up.
Just look up to the rafters and you might see me.

Afterwards, we continued our walk, and ended up at a Vegetarian Restaurant, called The Table. I had a Chocolate Fudge Pudding, which was pretty good.

Besides the Bathroom being tricky to get in & out of for me, it’s a pretty nice place actually.

By this time, it was almost 8, so we wanted to head home.

We hopped on an OC Transpo Bus, which was interesting.
The Driver was a Woman probably in her 60’s who quite obviously had a hard time driving the Bus.
Also, the front doors kept opening & closing as the Bus was moving.
To top it off, when we reached our stop, she stopped roughly. My head went forward & back, but luckily, I wasn’t hurt.

Another wacky journey on public transit.

After we got home, I posted the pictures on Facebook, and that was it.

So yesterday, I ate or drank:
Water
Iced Tea
Chocolate & Mandarin Ice Cream
Espresso
Chocolate Fudge Pudding

All I can say is, well, wish me luck.

It’s cold & raining off & on today, so I’m just staying home.

In other news…
I have two Appointments this week.

On Wednesday, I’m seeing my Respirologist to discuss the results of my Chest X-Ray. They already called and everything appears to be ok, but I still want to see it for myself.
Luckily, I haven’t had any breathing broblems for a few weeks now.
I’ve been using a Humidifier when I sleep, and it seems to be helping.

On Thursday, I have an Appointment to try out my new Joystick for my Wheelchair. I think I’ll be taking it home to try it out for a little while. Hopefully, I don’t get hurt, or hurt others.

My Wife & I attended a Graduation last night for one of our friends.
We had a great time, and we got to see her after, and hang out with her Family, which was nice.
Some of the Speeches were long, especially the one at the end.
By this point, we had moved upstairs and watched from the upper level.
It seemed that everyone up there wanted him to wrap it up as well.

After it was over, my Wife & I headed home.

As for today, I went out to check my Lottery Numbers, & I got an Espresso.
Much to my surprise (not really) I didn’t win anything.

That’s it for now.

My Wife & I managed to go for Dinner on Wednesday with some friends. We had a pretty good time. Unfournately, it started raining, and we got soaked, but nothing happened to my Chair.

My Chair sometimes goes nuts or just stops working if it gets wet.
One time, I came home after getting stuck in the rain. I came in my front door, stopped, my Chair suddenly sped towards the wall that seperates my bedroom and living room, and nailed it full force.

Luckily, I was able to spread my legs apart just in time to avoid injury.
Just picture a Disabled version of Jean Claude Van Damme doing the splits.
Now that you’re all traumatized, let’s move on.

Tonight, my Wife & I are heading to a Graduation for another one of our friends.
She’s graduating from Nursing Class.
We’re looking forward to being there.

It’s supposed to rain all Weekend starting on Saturday, so I may go see a Movie on Sunday Evening.

Whatever you people do this Weekend, have a good time.

Good News: So yesterday, I got my Chair Controllers back, which is obviously great news. It means that I can go out again, and just generally go fast.

Bad News: There’s Construction going on near my place, and it’s alot harder for me to get out. I went to the Store last night, and had to get on the road to get there. I usually drive on the road, but not actually into oncoming traffic. This’ll be a fun Summer.

Good News: My Wife & I have Dinner plans tonight with another Couple.

Bad News: It’s supposed to rain for 24 hours, starting right around the time we’re going.

Good News: I bought two Tickets for this Week’s Lotto Max, with the Jackpot worth $50 Million, plus 20 prizes of $1 Million.

Bad News: I have little chance of even winning $5.

That’s it for now.

Congrats to everyone involved in the CHEO Telethon this year. They managed to raise 6.2 Million Dollars, which is a new record.

I watched the show for most of the Afternoon, and even called in.
I donated $10, and I challenged anyone who knew me from 1975-1994 to double my $10 donation.
Sadly, they didn’t mention it on the air. It’s too bad because I’m pretty certain that it could’ve brought in alot of money for them.
TONS of people know me just from my days of living there.
Nurses, Doctors, Former Patients, Families, & the list goes on & on & on.

In an odd way, I feel like a former Childhood Actor.
As a kid, I was always featured on the Telethons, and interviewed for various things.

Ever since I left CHEO, I haven’t really been asked to return.
I did a Radiothon for them about five years ago, but that’s about it.
I really don’t get it.
In my mind, I’d be a great success story for them.

We could discuss my time there, and all the great Nurses & Doctors there, plus what I’ve been up to since I left in 1994.
It’d be like a “where are they now” type of segment.
Not to sound high on myself, but I really think they’re missing out on something here.

I plan on fixing that though, or at least trying to.
Over the next while, I’ll be trying to make my presence known to them.
Through emails, & networking with people, I’m going to try to return to them, more or less.

I hope to be on the actual Telethon next year.
Alot of people out there would really appreciate seeing me and helping them out.

My Wife knows about my plan and fully supports it.
Being in the spotlight or public eye isn’t her thing, so if it does happen, you’ll be seeing me back solo on the CHEO Telethon next year.

I like to hope that I’ll be involved in at least one or two CHEO fundraisers before then.

Stay tuned

As some of you know, I lived at the Childrens Hospital Of Eastern Ontario for nineteen years.
This weekend is their annual Telethon on CTV Ottawa, so I’d like to take a few moments to talk about them, and how they helped me.

I was born in 1975 with a rare form of Muscular Dystrophy called Nemaline Myopathy.
When I was six months old, my lungs collapsed, and I was rushed to CHEO, where I’d live unti 1994.

For the first six years, I lived in ICU, mostly because I was only given a year to live.
Due to my strength, and determination, and the Doctors & Nurses, I refused to give up.

Six years later, they decided to transfer me to 4 West.
4 West was full of kids my own age, and I was able to interact with them, which was a whole new experience for me.
I made a ton of friends, and was considered the “big Brother” to many. I’d literally spend hours hanging out with kids, and trying to distract them from their worries.
Whenever a new kid arrived, I’d be the one to show them around, and try to calm their fears.

Sadly, most of those kids passed away.

Despite that happening, I wouldn’t trade those memories in for anything. I learned quite alot at a very young age, which has helped me today.

In 1992, due to funding cuts, 4 West was closed.
Myself, & another Male Patient were transferred to 5 North.

I refer to these times as my dark days of CHEO. The reason is because 5 North is where they put the long term care patients. It mostly consisted of babies, and/or kids who weren’t really able to communicate. Needless to say, I wasn’t happy to be there, and I refused to let my friends see me like that.

In 1994, I left CHEO.
At the time, and for several years following, I tried to seperate myself as much as I could.
In my mind, I didn’t want to only be known as “CHEO’s longest resident”.
I wanted to be my own person, and do other incredible things with my life.
I’ve certainly done many things since 1994.

At this point of my life, I feel that I’d like to do my part in discussing CHEO and everything they did for me in nineteen years. The Nurses & Doctors there saved my life many many times, and for that, I will always be grateful.

Recently, I’ve been lucky enough to have contact again with a few Nurses there, and they’ve shed light on what I was like back then.

It was tough for all of us, but we made the best of it, and most importantly, they helped me survive, and made me into the person that I am today.

Without CHEO, I wouldn’t be here right now.

To those of you in Ottawa, Canada, I ask you to please donate to CHEO.
My Story is only one of millions & millions of kids that have been helped by them.

For those not living in Ottawa, please donate to your local Childrens Hospital.
There might just be another kid growing up there like I did.

Thank you