I haven’t felt like posting for the past few days because I’m tired of talking about my health issues. I’m happy to report though that I’m off the needle though and today was my last day for my Antibiotics. So, that means that as of now, I have only one drug to deal with. It happens to be the Rat Poison Pills, which taste really really bad.
Last night, my Wife & I were finally gonna have a night out and go see The Wrestler.Just before we left, I started having Stomach issues. Once they subsided, we rented WALL-E, which I recommend you check out if you haven’t already.
By now, you’re probably wondering why is this a historic day for me.
On March 16th, 1994, I left the Childrens Hospital Of Eastern Ontario after living there for 19 years. The main reason that I stayed there for so long is because there wasn’t anywhere else to put me.
My years included 6 years in ICU, followed by 9 years on a ward full of school aged kids, followed by 2 years on a ward full of babies and other kids that needed long term care. From there, they sent me back with the school aged kids.
My “happiest* time was being with the school aged kids. I was able to make TONS of friends. We got to hang out, play video games, or we’d just talk and I’d try to cheer them up during their stay. Whenever there was a new kid or family, I’d usually show them around the ward and answer any questions they had. The downside was that ALOT of my friends passed away due to various diseases & illnesses.
When I was about 14, I got asked if I wanted to live in a Group Home or in a Long Term Care Hospital. My response was that I wanted to live in my own place. At the time, a person requiring 24/7 care wanting to live on their own was simply unheard of, at least here in Canada.
My Mom & I quickly started a letter writing campaign to see if it was at all possible. We hit many roadblocks as expected, but in the end, we prevailed.
On March 16th, 1994, I woke up for the last time at CHEO. The Hospital threw me a big party, the Nurses & other Staff came to say goodbye, and the Media was out in full force. I was the first guy in Canada to attempt this.
It definitely hasn’t been easy, but it still feels amazing.
Just 4 years ago, they tried to kick me out of my home, simply because it was too expensive to keep me here. This time around, my Wife & I successfully won that arguement and I’m still here.
15 years later
My goal is to surpass 19 years and at least be able to say that I survived longer on my own than I did in the Hospital.
As the song goes, “Nothing is better than freedom”.
Thanks for reading.